12:03am
Taylor had his second swallow study at rehab yesterday afternoon, and he did a great job. He had two previous studies done when he was in the hospital, but he did poorly on both of those. This study was planned for Friday, but he's done so well since the last study they decided to move it up a few days. He still isn't real crazy about having to snort a plastic tube with a camera on the end. The camera allows the speech therapist to monitor where the fluids and food goes to determine if there is any seeping into the windpipe.
He will now eat 3 pureed meals and will only get 2 cans of bolus feeding solution via the feeding tube. He'll continue on the continuous feeding tube from 6pm until 6am each day. If he continues to do well, he'll next go from pureed to ground consistency, then solids cut into small pieces and finally to a regular meal.
He can also now drink "nectar thick" liquids, about the consistency of maple syrup. The next step is thin liquids, like milk and water.
He has now gained back 15 of the 30 pounds he lost. At his lowest weight of 118 pounds, you could count his ribs on his back. He was terribly thin.
Tonight Taylor tried to whistle, but the paralysis of the left side of the face won't allow him to. He said "It's a good thing I wasn't a professional whistler, or I'd have to find another profession". He has the ability to find humor in just about anything, including his medical and physical condition. Fortunately, he has maintained a really good attitude about the physical challenges he still faces.
Taylor had his second swallow study at rehab yesterday afternoon, and he did a great job. He had two previous studies done when he was in the hospital, but he did poorly on both of those. This study was planned for Friday, but he's done so well since the last study they decided to move it up a few days. He still isn't real crazy about having to snort a plastic tube with a camera on the end. The camera allows the speech therapist to monitor where the fluids and food goes to determine if there is any seeping into the windpipe.
He will now eat 3 pureed meals and will only get 2 cans of bolus feeding solution via the feeding tube. He'll continue on the continuous feeding tube from 6pm until 6am each day. If he continues to do well, he'll next go from pureed to ground consistency, then solids cut into small pieces and finally to a regular meal.
He can also now drink "nectar thick" liquids, about the consistency of maple syrup. The next step is thin liquids, like milk and water.
He has now gained back 15 of the 30 pounds he lost. At his lowest weight of 118 pounds, you could count his ribs on his back. He was terribly thin.
Tonight Taylor tried to whistle, but the paralysis of the left side of the face won't allow him to. He said "It's a good thing I wasn't a professional whistler, or I'd have to find another profession". He has the ability to find humor in just about anything, including his medical and physical condition. Fortunately, he has maintained a really good attitude about the physical challenges he still faces.
1 comment:
Hey that weight gain is great, I am glad to hear that.
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